Uniting Research, Healthcare, and Action to Forge a Pain-Free Future.

Our Mission

To tirelessly research, inform, hear, respect, treat, and support every person touched by sickle cell disease.

We elevate groundbreaking research, innovative healthcare treatments, and a community of support to create a future where sickle cell disease is a livable, non-threatening condition.

While the genetic cause of sickle cell disease was discovered in 1910, research on treatments and potential cures have been underfunded.

Because the disease is not widely understood in the medical field, the pain of Sickle Cell Warriors is often not treated appropriately. The result? A community that has waited far too long for the medical breakthroughs and compassionate care they deserve. This is the reality we are working to change.

The Current State of Sickle Cell Disease

Sickle cell disease is a genetic disorder that causes intense pain, serious health complications, and, when left untreated, a shorter life span. Sickle Cell Warriors live with daily pain punctuated by pain crises — when misshapen (or sickled) red blood cells stop the healthy flow of blood through their body.

A pain crisis requires immediate medical attention. Long and frequent hospital visits make it difficult for Sickle Cell Warriors to progress through school, work, and life’s important moments.

How We Change the Conversation

Americans are affected by sickle cell disease .

1 +

Source: https://www.nhlbi.nih.gov/health/sickle-cell-disease

54 years

Average life expectancy of a sickle cell warrior.

Source: https://pmc.ncbi.nlm.nih.gov/articles/PMC6902797/

1 out of 13

African Americans carry the sickle cell trait.

Source: https://www.nhlbi.nih.gov/health/sickle-cell-disease

1 out of 13

African Americans carry the sickle cell trait.

Source: https://www.nhlbi.nih.gov/health/sickle-cell-disease

1 out of 5

Physicians feel comfortable treating sickle cell disease.

Source: https://pmc.ncbi.nlm.nih.gov/articles/PMC4352517/

1 out of 5

Physicians feel comfortable treating sickle cell disease.

Source: https://pmc.ncbi.nlm.nih.gov/articles/PMC4352517/

Sickle Cell Centers of Excellence

Accepting new patients at all 15 centers across Florida.

Sickle Cell Disease Registry

Join the fight to shape the future

Upcoming & Recent Symposia

The 20th Annual Sickle Cell Disease Research and Educational Symposium & The 49th National Sickle Cell Disease Scientific Meeting

Fort Lauderdale, FL

June 5-7, 2026

The Grant Writing Institute

Fort Lauderdale, FL

June 4, 2026

Virtual Symposium on Nursing in Sickle Cell Disease

Virtual

October 2, 2025

The Journal

The Journal of Sickle Cell Disease, published in partnership with Oxford University Press, serves as the definitive source for groundbreaking research that is reshaping how we understand, treat, and ultimately cure sickle cell disease.

We publish the most impactful research from across the world, providing a vital platform to connect the global scientific community and share knowledge.

Patient Stories

ADRIENNE WILLIAMS

I am very grateful the doctor took my symptoms seriously.and had my best interest at heart. The virtual appointment was amazing. It helped me get feedback immediately a few days after the problem started. I saved so much time. I am excited about using the service more frequently. Thank you.

LYNNORA PINKNEY

They’re extremely helpful and genuinely love and take care of their patients with the utmost compassion and the staff are angels walking here on Earth.

QUEEN TINY

I really love the team and the center, they really help you there better than going to the ER. If you don’t wanna be admitted, you get treated and everything here.

FIRE FROMGOD

I am Thankful that the Foundation for Sickle Cell Disease Research has been a place where Patients can be rescued from Sickle Cell Anemia. Last week I needed fluids after 8:00 pm. I was very GREATFUL to be seen the following day as a Walk in. Thank you to all the Doctors, Nurses and Staff!!! May the Vision of LOVE continue!!!

SONIA BAKER

I feel blessed and humbled to know that there are a group of professionals who have served and protect Sickle Warriors with respect and compassion. May God bless the people and the supporters of the Foundation for Sickle Cell Disease Research.

KELSEY SOLOMAN

This place is great for daily treatments, everyone here is nice but it is slow paced and does take time before infusion, quicker than the ER for sure but a very clean, quiet, friendly environment.

DAWN GILLEY

Ms.Rita and also the nurses work hard to get you accessed and medicated in a timely manner. Ms. Janel is very welcoming and you can see and feel her concern for patients care.

DENISE MCNAIR

The staff is exceptionally hospitable and very pleasant. The facility is very warming and comfortable. My experience is always unforgettable. Thank you for the excellent service your company provides.

TAKIYAH

I called this foundation yesterday desperately looking for support for a family member. They listened and provided prompt and caring responses. Much appreciated.

FELICIA THOMPSON

Everyone was nice from the time I walked in until I walked out. They really was educational and explained the hold process of their Facility and the services that they offer. I would recommend The Foundation For Sickle Cell Disease Research to anyone who is suffering with this horrible disease.

Workforce Education

Expert Insights for Next-Level Sickle Cell Disease Care in Adult Patients

December 15, 2025 2:00 PM

Dr. Gershwin Blyden, Dr. Anthony Hall, Dr. Heston Levitsky, Dr. Kalpna Gupta

See Details

Expert Insights in Action: Practical Applications for Sickle Cell Disease Care in Adults (6-week curriculum Session 1)

December 19, 2025 3:00 PM

Dr. Wally Smith

See Details

Weekly SCD Practice Update

Stay current with the latest sickle cell research, regulatory updates, and guidelines.

A feasibility study in adults with sickle cell disease (SCD) found high acceptability and successful collection of salivary stress biomarkers, paving the way for research linking psychosocial stress and biological responses.

12.3.25

Interviews with 19 older adults with sickle cell disease (SCD) reveals aging challenges and wisdom for management of sickle cell and healthy aging.

11.26.25

Study finds improvement in emergency medicine (EM) residents’ knowledge after a 40-minute lecture on sickle cell disease (SCD)

11.19.25

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