Uniting Research, Healthcare and Advocacy to Forge a Pain-Free Future.

At the Foundation for Sickle Cell Disease Research, we believe everyone is born with the right to a long, healthy, and pain-free life.

We elevate groundbreaking research, innovative treatments, and a community of support on behalf of every Sickle Cell Warrior.

THE CURRENT STATE OF

SICKLE CELL DISEASE

1 out of 13

African Americans carry the sickle cell trait.*

100,000+

Americans are affected by sickle cell disease.

42 to 48 years

Average life expectancy of a Sickle Cell Warrior.

1 out of 5

Physicans feel comfortable treating sickle cell disease.

*1 out of every 365 African American births are affected by sickle cell disease
*1 out of every 16,300 Hispanic American births are affected by sickle cell disease

Sickle cell disease is a genetic disorder that causes intense pain, serious health complications, and, left untreated, a shorter life span. Sickle Cell Warriors live with daily pain punctuated by pain crises — when misshapen (or sickled) red blood cells stop the healthy flow of blood through their body. A pain crisis requires immediate medical attention. Long and frequent hospital visits make it difficult for Sickle Cell Warriors to progress through school, work, and life’s important moments.

Because the disease is not widely understood or recognized in the medical field, the pain of Sickle Cell Warriors is often disregarded. Though the genetic cause of this disease was discovered in 1910, research on treatments and potential cures have been underfunded.

How The Foundation for Sickle Cell Disease Research

CHANGES THE CONVERSATION

We envision a future where sickle cell disease is a livable, non-threatening condition.

We fight the battle against sickle cell disease on multiple fronts using a human-centric, community-based, and rigorously scientific approach. Below are the key ways we strive toward a pain-free future.

Journal of Sickle Cell Disease

In partnership with Oxford University Press, we publish the Journal for Sickle Cell Disease, promoting a holistic understanding of the disease, its treatment, and efforts towards a cure.

HOSTING EDUCATIONAL SYMPOSIA

Every year, leading researchers, physicians, service providers, advocates, and Sickle Cell Warriors gather to present research developments, share resources, and learn from one another.

PROVIDING ACCESSIBLE, SPECIALIZED CARE

Our Centers of Excellence are the only standalone sickle cell centers in the United States. They provide all-inclusive care for Sickle Cell Warriors while facilitating ongoing clinical research.

CAPTURING
REAL STORIES

Elevating the voices of Sickle Cell Warriors is crucial to providing better support to this community. Their shared experiences build a foundation of hope and strength.

EDUCATING THE WORKFORCE

We develop Workforce Curriculum to educate doctors, nurses, service providers, and healthcare professionals on the fundamentals of treating Sickle Cell Warriors.

BUILDING A COMMUNITY OF SUPPORT

Monthly donors and members of The Sickle Cell Research Society of America provide the foundation for better treatments and research of sickle cell disease.

Dates for Upcoming Symposia

19th Annual Sickle Cell Disease Research and Educational Symposium & the 46th National Sickle Cell Disease Scientific Meeting

Fort Lauderdale, FL
June 6-8, 2025

The Grant Writing Institute

Fort Lauderdale, FL
June 5, 2025

Virtual Symposium on Nursing in Sickle Cell Disease

Virtual
October 2, 2025

Patient Stories

Adrienne Williams

I am very grateful the doctor took my symptoms seriously.and had my best interest at heart. The virtual appointment was amazing. It helped me get feedback immediately a few days after the problem started. I saved so much time. I am excited about using the service more frequently. Thank you.

Lynnora Pinkney

They’re extremely helpful and genuinely love and take care of their patients with the utmost compassion and the staff are angels walking here on Earth

Queen Tiny

I really love the team and the center they really help you there better then going to the er if you don’t wanna be admitted you get treated and everything here

Fire FromGod

I am Thankful that the Foundation for Sickle Cell Disease Research has been a place where Patients can be rescued from Sickle Cell Anemia. Last week I needed fluids after 8:00 pm. I was very GREATFUL to be seen the following day as a Walk in. Thank you to all the Doctors, Nurses and Staff!!! May the Vision of LOVE continue!!!

Sonia Baker

I feel blessed and humbled to know that there are a group of professionals who have served and protect Sickle Warriors with respect and compassion. May God bless the people and the supporters of the Foundation for Sickle Cell Disease Research.

Kelsey Soloman

This place is great for daily treatments, everyone here is nice but it is slow paced and does take time before infusion, quicker than the ER for sure but a very clean, quiet, friendly environment.

Dawn Gilley

Ms.Rita and also the nurses work hard to get you accessed and medicated in a timely manner. Ms.Janel is very welcoming and you can see and feel her concern for patients care.

DENISE MCNAIR

The staff is exceptionally hospitable and very pleasant. The facility is very warming and comfortable. My experience is always unforgettable. Thank you for the excellent service your company provides????????

Takiyah

I called this foundation yesterday desperately looking for support for a family member. They listened and provided prompt and caring responses. Much appreciated.

Felicia Thompson

Everyone was nice from the time I walked in until I walked out. They really was educational and explained the hold process of their Facility and the services that they offer. I would recommend The Foundation For Sickle Cell Disease Research to anyone who is suffering with this horrible disease.

Upcoming Workforce Curriculum 

5/21/25

Expert Approaches to Comprehensive Sickle Cell Disease in Adult Patients

Target Auidence: Public
2:30 PM
5/23/25

Expert Guidance for Navigating Comprehensive Sickle Cell Disease Care for Pediatric Patients

1:00 PM
6/3/25

Advancing Sickle Cell Disease Care Through Public Health and Community Interventions

1:00 PM
6/11/25

Advocating for Effective Training and Policy to Stimulate Future Research and Innovation for Sickle Cell Disease

1:00 PM
6/17/25

Empowering Patients With Sickle Cell Disease: Expert Approaches to Navigation, Outreach, and Support

6:00 PM
6/23/25

Empowering Patients With Sickle Cell Disease: Expert Approaches to Navigation, Outreach, and Support

6:00 PM
5/20/25

The Latest Advances in Precision Diagnostics, Imaging, and Lab-Based Sickle Cell Disease Monitoring

12:00 PM
6/25/25

The Latest Advances in Precision Diagnostics, Imaging, and Lab-Based Sickle Cell Disease Monitoring

4:00 PM

Stay Informed. Stay Empowered.

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Pain Management and a Prepared Workforce

Pain Management and a Prepared Workforce

Research and Data Insights Delivering High-Quality Sickle Cell Disease Care with a Prepared Workforce