“A chronic disease cannot be handled in an acute care setting. You can get acute treatment in an ER/hospital, but a chronic disease needs chronic care management in an outpatient setting. Sickle cell is for a lifetime.”
Dr. Lanetta Bronté
Founder, Foundation for Sickle Cell Disease Research
The Foundation for Sickle Cell Disease Research is a comprehensive, non-profit organization that provides a platform for researchers, healthcare providers, and those living with sickle cell disease. Working collaboratively with academia, pharmaceutical, biotechnology and community organizations, the best practices are identified to help with the management and future care for sickle cell patients.
FSCDR was founder by Dr. Lanetta Bronté in December 2012 after working closely with the sickle cell community and noticing the extreme lack of care for a disease that affects 3 million people nationwide. Dr. Bronté serves as principal investigator on grants and industry-sponsored trials in sickle cell disease.
As of February 2015, FSCDR opened the Sickle Cell Care and Research Network, the nation’s first standalone outpatient center completely devoted to sickle cell care and services.This is historically significant, as the South Florida community has one of the nation’s highest numbers of individuals affected by sickle cell, but not yet had a center specifically made for sickle cell treatment.