Privacy Policy

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Effective Date: March 25, 2025

At the Foundation for Sickle Cell Disease Research (“FSCDR,” “we,” “us,” or “our”), we are committed to protecting your privacy. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website https://fscdr.org/ and use our services. By accessing our website, you agree to the terms outlined in this policy.

1. Information We Collect

We collect information that you voluntarily provide, including:

  • Personal Information: Name, email address, phone number, mailing address, and other contact details.
  • Donation Information: Payment details when you make a contribution.
  • Health Information: If you participate in research programs or surveys, we may collect health-related data with your consent.
  • Technical Data: IP address, browser type, operating system, and usage data collected through cookies and analytics tools.

2. How We Use Your Information

We use collected information to:

  • Provide and improve our services.
  • Process donations and issue receipts.
  • Communicate with you about our research, events, and updates.
  • Comply with legal and regulatory requirements.
  • Enhance user experience through website analytics and customization.

3. Information Sharing and Disclosure

We do not sell or rent personal information. However, we may share data with:

  • Third-party service providers assisting with website functionality, payment processing, or research.
  • Legal authorities when required by law or to protect our rights and safety.
  • Research partners, in de-identified or anonymized formats, for scientific studies.

4. Data Security

We implement reasonable security measures to protect your data from unauthorized access, alteration, or disclosure. However, no method of transmission over the internet is 100% secure.

5. Your Rights and Choices

You have the right to:

  • Access, correct, or delete your personal information.
  • Opt-out of marketing communications.
  • Withdraw consent where applicable.

To exercise these rights, contact us at [email protected].

6. Cookies and Tracking Technologies

We use cookies to enhance website functionality and analyze traffic. You can manage cookie preferences through your browser settings.

7. Third-Party Links

Our website may contain links to external sites. We are not responsible for their privacy practices.

8. Changes to This Privacy Policy

We may update this policy periodically. Changes will be posted with a revised effective date.

9. Contact Us

For questions about this policy, reach us at:

Address:
1685 South State Road 7
Unit 4, Hollywood, Florida, 33023

Email: [email protected]

Phone: 954 397 3251