17th Annual Sickle Cell Disease Research and Educational Symposium
Virtual and In-Person
View the Recap from 2022!
About Us
The Symposium is an exciting three-day meeting at The Harbor Beach Marriott Resort and Spa in Fort Lauderdale, FL, from June 16, 2023-June 18, 2023. It includes more than 400 leading researchers, physicians, clinicians, stakeholders, advocates, and social workers from all over the world—all with the goal of finding better treatment and, ultimately, a cure for sickle cell disease.
The Foundation for Sickle Cell Disease Research, a multi-specialty non-profit 501(c)(3) organization, is dedicated to making sickle cell disease a non-threatening condition. Our Symposia attract hundreds of unique individuals, who are leading researchers, physicians, clinicians, stakeholders, advocates and social workers with the common goal of finding better treatment, and ultimately, a cure for sickle cell disease. Our attendees also originate from every corner of the world.
17th Annual Sickle Cell Disease Research and Educational Symposium
Virtual and In-Person
| Date/Time (EST) | Agenda |
|---|---|
| 16th, June | 6th Annual Sickle Cell Disease Access To care summit |
| 12:00 PM – 12:45 PM | The State of Sickle Cell Disease by FSCDR, Dr. Lanetta Bronte-Hall |
| 12:45 PM – 1:45 PM | Access to Care Keynote Presentation |
| 2:00 PM – 4:00 PM | The Patient Symposium: Managing Pain, Sleep, and Health-Related Quality of Life |
| 5:30-6:30pm | FSCDR’s Welcome Reception |
| 7:30 PM – 9:30 PM | Adult Patient Town Hall & Dinner |
| 7:30 PM – 9:30 PM | Child & Caregiver Patient Town Hall & Dinner |
| 17th, June | 17th Annual Sickle Cell Disease Research and Educational symposium |
| 8:30 AM – 9:15 AM | Top Abstract Oral Presentations |
| 10:00 AM – 12:00 PM | Organ Damage and other Cardiac Diseases in Sickle Cell Disease Educational Session |
| 10:00 AM – 12:00 PM | Behavioral Psychology: School Success, Sleep, Pain Management Educational Session |
| 10:00 AM – 12:00 PM | Nursing Bootcamp Educational Session |
| 1:00 PM – 2:00 PM | Keynote Presentation |
| 2:00 PM – 3:30 PM | Nursing Plenary Session |
| 3:30 PM – 5:30 PM | Curative Therapies Plenary Session |
| 5:30 PM – 6:30 PM | Live Poster Session |
| 7:30 PM – 9:30 PM | Presidential Reception (Invite Only) |
| 18th, June | 46th National Sickle Cell Disease Scientific Meeting |
| 8:00 AM -9:00 AM | Unmet Need: Challenges Related to Research and Clinical Management of SCD Pain Plenary Session |
| 9:00 AM – 10:15 AM | An Update on Sickle Cell Disease from Federal Agencies |
| 10:15 AM – 11:15 AM | Dr. Kwaku “KOF” Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium |
| 11:15 AM – 12:00 PM | Scientific Keynote Presentation |
| 1:00 PM – 4:15 Pm | Oral Abstract Presentations – Topics Include: Psychosocial, Health Services, Basic Science, Health Services, Clinical Research, Clinical Trials/Clinical Epidemiology |
Whether you attend every year or this will be your first, THE FOUNDATION FOR SICKLE CELL DISEASE RESEARCH’S promises to be an unforgettable, invaluable and one-of-a-kind career opportunity.
17th Annual Sickle Cell Disease Research and Educational Symposium
Deepika Darbari, MD
Scientific Chair
Deepika Darbari, M.D., hematologist at Children’s National Hospital. Dr. Darbari started studying and treating SCD at Howard University, where she also saw firsthand the many disparity issues surrounding the condition, such as inadequate funding, limited treatment options and biases and stigma. She also learned about barriers to career development that minority students faced. She worked to address those issues through her mentorship.
Dr. Darbari has mentored many medical students, residents and fellows whose research projects focused on improving care for individuals living with SCD.
Titilope Fasipe MD, PhD
Scientific Co-Chair
Titilope Fasipe MD, PhD is board certified by the Texas State Board of Medical Examiners and the American Board of Pediatrics in both pediatrics and pediatric hematology. Dr. Titilope Fasipe’s goals are shaped by her desire to help children facing the hardships of a blood disorder. She is intrigued by the clinical challenges of non-malignant hematologic diseases, where in particular, patients with sickle cell disease continue to have significant co-morbid complications and decreased lifespan. Furthermore, she has long been passionate about the psychosocial barriers to care experienced by children with sickle cell, especially during transitional years.
Wally R Smith, MD
Scientific Co-Chair
Wally R. Smith, MD is the Florence Neal Cooper Smith Professor of Sickle Cell Disease at Virginia Commonwealth University (VCU). He also serves as the Vice-Chairman for Research of the Division of General Internal Medicine and is the former Scientific Director of the Center on Health Disparities at VCU. Dr. Smith is an experienced implementation scientist and an expert in clinical and health services research in sickle cell disease. He has authored over 100 publications, and served as an investigator on over 50 externally funded grants and contracts. Dr. Smith has been associated with the development of two potential lead compounds for sickle cell disease at VCU.
Become a Member of the Sickle Cell Research Society of America.
Whether you attend every year or this will be your first, THE FOUNDATION FOR SICKLE CELL DISEASE RESEARCH’S promises to be an unforgettable, invaluable and one-of-a-kind career opportunity.
Registration
All registrations can be made on the Annual Symposium registration page Registrants will choose between attending in person or virtually and by purchasing an entire conference ticket or a specific day you would like to attend.
All registrations can be made on the Registration Page. Registrants will choose between attending in person or virtually and purchasing an entire conference ticket or a specific day you would like to attend.
The cost to attend the Grant Writing Institute is $495. The Grant Writing Institute will be only offered in-person there will be no virtual attendee option.
The Grant Writing Institute and The 17th Annual Sickle Cell Disease Research and Educational Symposium and 46th National Sickle Cell Disease Scientific Meeting are two separate events. Attendees who wish to attend both will receive 30% off the combo ticket. To obtain the 30% discount, simply select your professional designation on the Registration Page, then select the GWI Combination Ticket.
Attendees who wish to attend both will receive 30% off the combo ticket. To obtain the 30% discount, simply select your professional designation on the Registration Page, then select the GWI Combination Ticket.
Individuals register and pay only for the days they plan to attend. You will be able to add additional dates once the Symposium and Meeting have started.
In-Person Entire Conference:
- Physician/Executive/Terminal Degree/Professional – $900
- Nurse/Physician Assistant/Social Worker/Fellow/Resident- $650
- Student – $255
- Emeritus- $150
- Individual with Sickle Cell Disease or Caregiver: Free
In-Person Daily Ticket:
- Physician/Executive/Terminal Degree/Professional- $300
- Nurse/Physician Assistant/Social Worker/Fellow/Resident – $225
- Student – $85
- Emeritus- $50
- Individual with Sickle Cell Disease or Caregiver: Free
Virtual Entire Conference:
- Physician/Executive/Terminal Degree/Professional – $450
- Nurse/Physician Assistant/Social Worker/Fellow/Resident – $325
- Student – $135
- Emeritus- $75
- Individual with Sickle Cell Disease or Caregiver: Free
Virtual Daily Ticket:
- Physician/Executive/Terminal Degree/Professional – $150
- Nurse/Physician Assistant/Social Worker/Fellow/Resident – $112.50
- Student – $45
- Emeritus- $25
- Individual with Sickle Cell Disease or Caregiver: Free
- Resident – A professional who has graduated from medical school and is pursuing additional training in their field of interest.
- Fellow – A board-certified provider who has finished residency training and is pursuing more specialized training in their area of interest.
- Student – An undergraduate medical student who has not graduated from medical school or has not completed any residency training.
The Foundation for Sickle Cell Disease Research accepts the following forms of payment: check, Visa, MasterCard, and American Express. Checks must be post-dated for May 20, 2022. Please make checks payable to: Foundation of Sickle Cell Disease Research. For any trouble processing payments please email [email protected].
Check Mailing Address:
Foundation of Sickle Cell Disease Research
1685 South State Road 7 Unit 4
Hollywood, Florida, 33023
Substitutions and Registration Transfers:
You may request a substitution for the individual registered for the symposium if received by April 1, 2022. In addition, The Foundation for Sickle Cell Disease Research will allow In-Person Conference Registrants to transfer to Virtual Conference Registration, and vice versa. Your request must be received on or before April 1, 2022. Any money will be credited to your account (if going from in-person to virtual, which is cheaper, then you receive a credit for a future meeting/webinar.
All substitutions and registration transfers must be in writing. The Foundation for Sickle Cell Disease Research will accept cancellations, substitution, and transfer by email. Please email: [email protected].
Cancellations and Refunds
For In-Person Attendees Only: If the event that an attendee is sick, hospitalized, or can’t travel due to other medical-related illness and/or an alternating life event, the Foundation of Sickle Cell Disease Research will offer a refund on the case by case by bases with appropriate documentation.
There are no cancellations or refunds allowed for virtual registrants; all virtual attendees will access session recordings after the Symposium.
For refunds please email [email protected].
17th Annual Sickle Cell Disease Research and Educational Symposium
June 16th - 18th, 202317th Annual Sickle Cell Disease Research and Educational Symposium
We are currently have an open waitlist for those interested in keeping up to date with symposium details and information. Thank you for your interest in joining us for this very exciting event!
