Journal of Sickle Cell Disease and Hemoglobinopathies

Journal of Sickle Cell Disease and Hemoglobinopathies

Guest Editor, Kenneth I. Ataga, MD, MBBS

FEBRUARY 13, 2017

Adrienne Arsht Center For the Performing Arts of Miami-Dade County John S. and James L. Knight Concert Hall

FEBRUARY 14, 2017

Donna E. Shalala Student Center University of Miami 1330 Miller Drive, Coral Gables, Florida 33146

FREE SCREENING

At Our Sickle Cell Care & Research Network To Know Your Sickle Cell Trait Status

3858 Sheridan Street, Suite S
Hollywood, FL. 33021

MISSION STATEMENT
The Foundation for Sickle Cell Disease Research (FSCDR) is committed to supporting innovative research in Sickle Cell Disease to help maximize quality of life and improve survival for the generations of people affected with this disease.
VISION
To reduce the seven fold increase in mortality for adolescents and adults with Sickle Cell Disease.

Lanetta Bronte, MD,MPH, MSPH

President and Chief Health Officer

Lanetta Bronté, MD, MPH, MSPH is responsible for strategic planning, scientific, and administrative oversight of the Foundation for Sickle Cell Disease Research (FSCDR). She is a leading national and international researcher and population health scientist in the field of sickle cell disease, rare blood disorders, community-based participatory research, and chronic disease management. Dr. Bronte has extensive experience in developing programs that are closely aligned with the recruitment and retention of underserved and underrepresented populations for treatment of SCD, research and clinical trials. She is currently President and CEO of the Foundation for Sickle Cell Disease Research (FSCDR), Chief Wellbeing Officer (CWO) of the Sickle Care and Research Network, FSCDR, LLC, an independent full-service outpatient medical treatment and clinical trials center that offers coordinated care for persons suffering from SCD.   Dr. Bronté is an Associate Professor in the Department of Public Health Sciences, Department of Health Services Research and Policy at the University of Miami, Miller School of Medicine where she has created a sickle cell disease research portfolio and an academic – community partnership to translate research into practice.

Dr. Bronté received her Bachelor of Arts in Biology and Master of Science degree in Medical Parasitology and Laboratory Practice from the University of North Carolina (UNC), Chapel Hill, Gillings School of Global Public Health. She then received a joint Doctor of Medicine and Master of Public Health with specialization in Health Policy and Administration (Health Policy and Management) from the UNC Schools of Medicine and Gillings School of Global Public Health. She completed an internship in Internal Medicine at Tulane University School of Medicine and residency in Psychiatry at the University of Miami, Miller School of Medicine. In addition, she completed a Health Research and Educational Trust/American Hospital Association Fellowship in Cultural Competence and Leadership. In February 2016, she became a Radical Wellbeing Ambassador of Deepak Chopra’s Radical Wellbeing to develop expertise areas that impact the quality of life and health of people, as well as why these practices are good for business and performance. Dr. Bronte was a featured guest for the course in New York City on February 6, 2016.

Dr. Bronté spearheaded a Sickle Cell Disease and Thalassemia Registry that currently has approximately 25,000 individuals with a hemoglobinopathy. Included in this Registry is over 2,500 individuals with Sickle Cell Disease. Dr. Bronté has served in several leadership positions including the Chief Medical Officer of the Sickle Cell Disease Association of America, Senior Medical Advisor to the Centers for Disease Prevention and Control, a member of the National Institutes of Health, National Heart, Lung and Blood Advisory Council, and a member of the 2014 Expert Panel for the National Institutes of Health, National Heart, Lung and Blood Institute Management of Sickle Cell Disease Guidelines. Dr. Bronté works tirelessly to create an environment of trust, sustainability and relevance, which has significantly increased participation in research by all members of the community.

Lanetta Bronte, MD,MPH, MSPH

President and Chief Health Officer

Lanetta Bronté, MD, MPH, MSPH is responsible for strategic planning, scientific, and administrative oversight of the Foundation for Sickle Cell Disease Research (FSCDR). She is a leading national and international researcher and population health scientist in the field of sickle cell disease, rare blood disorders, community-based participatory research, and chronic disease management. Dr. Bronte has extensive experience in developing programs that are closely aligned with the recruitment and retention of underserved and underrepresented populations for treatment of SCD, research and clinical trials. She is currently President and CEO of the Foundation for Sickle Cell Disease Research (FSCDR), Chief Wellbeing Officer (CWO) of the Sickle Care and Research Network, FSCDR, LLC, an independent full-service outpatient medical treatment and clinical trials center that offers coordinated care for persons suffering from SCD.   Dr. Bronté is an Associate Professor in the Department of Public Health Sciences, Department of Health Services Research and Policy at the University of Miami, Miller School of Medicine where she has created a sickle cell disease research portfolio and an academic – community partnership to translate research into practice.

Dr. Bronté received her Bachelor of Arts in Biology and Master of Science degree in Medical Parasitology and Laboratory Practice from the University of North Carolina (UNC), Chapel Hill, Gillings School of Global Public Health. She then received a joint Doctor of Medicine and Master of Public Health with specialization in Health Policy and Administration (Health Policy and Management) from the UNC Schools of Medicine and Gillings School of Global Public Health. She completed an internship in Internal Medicine at Tulane University School of Medicine and residency in Psychiatry at the University of Miami, Miller School of Medicine. In addition, she completed a Health Research and Educational Trust/American Hospital Association Fellowship in Cultural Competence and Leadership. In February 2016, she became a Radical Wellbeing Ambassador of Deepak Chopra’s Radical Wellbeing to develop expertise areas that impact the quality of life and health of people, as well as why these practices are good for business and performance. Dr. Bronte was a featured guest for the course in New York City on February 6, 2016.

Dr. Bronté spearheaded a Sickle Cell Disease and Thalassemia Registry that currently has approximately 25,000 individuals with a hemoglobinopathy. Included in this Registry is over 2,500 individuals with Sickle Cell Disease. Dr. Bronté has served in several leadership positions including the Chief Medical Officer of the Sickle Cell Disease Association of America, Senior Medical Advisor to the Centers for Disease Prevention and Control, a member of the National Institutes of Health, National Heart, Lung and Blood Advisory Council, and a member of the 2014 Expert Panel for the National Institutes of Health, National Heart, Lung and Blood Institute Management of Sickle Cell Disease Guidelines. Dr. Bronté works tirelessly to create an environment of trust, sustainability and relevance, which has significantly increased participation in research by all members of the community.

THE SICKLE CELL CARE AND RESEARCH NETWORK

The nation’s first outpatient center in Hollywood, Fl, solely devoted to sickle cell disease care and services.

The Sickle Cell Care and Research Network (SCCRN) is the nation’s first standalone outpatient center solely dedicated to sickle cell disease care and services. This is historically significant, as the South Florida community has one of the nation’s highest numbers of individuals affected by sickle cell, but not yet had a center specifically made for sickle cell treatment. We are accepting new patients daily and also offer free screenings. Know your sickle cell status!

FSCDR Has Partnered With

Because of this partnership, we can now provide patients with

PHYSICIAN/ PROVIDER NOTIFICATION

In the event of an emergency, MedicAlert will contact your physician to notify them of your medical condition. This coordination allows for your physician to communicate directly with the treating facility to understand  your situation and the treatment provided; allowing for exceptional care coordination during (and after) your medical emergency.

24/7 EMERGENCY RESPONSE

First Responders and medical professionals are trained to recognize MedicAlert IDs and call our 24/7 Emergency Response Center. We immediately connect them to your medical history, ensuring you receive quick treatment and proper medical care.

EMERGENCY HEALTH RECORDS

MedicAlert provides an electronic Emergency Health Record that you can maintain and access anywhere, at anytime. The information from your health record is communicated to first responders and health professionals during an emergency to speed your treatment and ensure quality care.

Get Signed Up Today!